It's that time again for more testing. It seems like it never ends. Three hours of pavement to hotel destination so we can make our first appointment at 6 pm. Just another intake. To follow tomorrow morning for testing.
Testing for IEP's, blood, psychological all for what? To be able to ask for help for a child with needs but first your kid must pass or actually fail the testing just to prove they really need the help.
Over the years, this has been very challenging for Seth and his teachers because he is very inconsistent with school work and any testing. Being on the Spectrum along with his other mixes makes it was difficult to know what he really needs help with and what he can handle independently. Along with the best ways and goals to help him strive.
Seth has come a very long way from where he first started and I wholeheartedly believe this is due to realizing Seth's difficulties from 13 months onward and early intervention. It is beyond frustrating to hear some people question if a child is on the Spectrum. This happened to me when Seth was four. I signed him up for a sport and some of my friends children were on his team. One of them only heard of the stories that we were going through with Seth and made a comment how he seems "so normal". UNTIL she saw him have a HORRIBLE sensory meltdown that involed banging his head on the ground, yelling words that made no sense, pulling his hair, covering his ears and ultimately running. She then quickly apologized. More on that topic another time.
My mind is tired. I dislike reliving Seth's younger years because that was him back then... Let's focus on the Seth who he is now. We are all a work in progress and all have issues some just are more intune and better equipped to handle most situations. I am tired.
Let the testing begin.
Wow. It has been quite some time since I have blogged on my page. Many reasons for this absence, but I will spare you all with the mundane daily excuses that we all live and have. Tired. Overwhelmed. Disorganized. Tired. There it is in a nutshell. Moving forward.
Since the start of First grade Seth has come a long way. His school and I are still in the works for his 504 and IEP. Hoping to have the final details next week. With that said, the last two months have been a pretty smooth ride in our household for him (finding the closest piece of wood to knock). I can only guess that this is due to many factors. His medication and dosage are right on, he is in routine with school-class-teacher, Rescare, his doctor, football season, wrestling season, maturing, slowly learning to control his emotions/tantrums, finally allowing us to help him and he is slowly recognizing and understanding how to help himself or at least he is seeing the difference when he is "doing better".
And BEST OF ALL.. He now LOVES and ACCEPTS when I hug and kiss him!!!!! Nothing beats that... NOTHING!
Along with his football and wrestling, skateboarding and surfing are still if not more then ever a huge "release" for him. He is like a work horse or working dog. I can not even begin to imagine what is happening in the "inside" of his brain when he is literally bouncing off the walls and speaking so fast with excess saliva. Always on the go and needs to be in constant motion. Though his body and muscles are quite rigid and not extremely flexible along with being semi clumsy and not always aware of his surroundings... he goes full force into whatever has his focus at that moment. Still to this day trying to teach him the correct stance on a skateboard, he wont have it. Will not listen. He knows all. Of coarse he does, he is 6 after all. Ha! His stubbornness and determination is a double edge sword. One edge makes a lot of chaos for him, loved ones and his surroundings which have led to countless meltdowns and hurt. On the other edge, he is not a quitter. Does not give up. This can pertain to school work, sports, cleaning, ect. He tends to give it his all until he gets it right or at least what he thinks is "right".
Whatever is "right" in Seth's world at the moment, is well... right. At least as he sees it. No use arguing, convincing, debating, proving him otherwise... his brain will not accept it. Period. (If I have learned anything in my 6 years with my son, it is the above.)
